President of Uzbekistan Shavkat Mirziyoyev has signed a decree on a program for social and medical support of children suffering from rare (orphan) and hereditary diseases. This program is planned for 2026-2030.
The number of such diseases that can be treated at the expense of the state will be increased from five to ten. In addition, the level of providing children in the republic with medicines will be raised from 95 percent to 99 percent.
Starting from the beginning of next year, citizens aged 18-21 with rare diseases will also have the opportunity to receive free medical supervision. Orphan diseases are very rare and are often hereditary, requiring complex and expensive treatment.
Such diseases include, for example, cystic fibrosis, hemophilia, Gaucher disease, phenylketonuria, and spinal muscular atrophy.
